I'm also the mom of two young children, three dogs, two rabbits, and a tank full of creatures. Thankfully, I have a husband who doesn't mind all the crazy.
Both kids have rare disorders. The Girl, who is four, has a Chiari Malformation. This is a condition in which the brain extends into the spinal column, where brains aren't meant to be. Her diagnosis at 18 months old came after a colorful and painful journey that ended at a hospital halfway across the country from our Florida home. Her neurosurgery at age 20 months was successful and we hope/expect that she will not need further treatment. She is smart, funny, creative, and now-unaffected by her health problem, although she is small for her age. She enjoys princesses, creating art, baby dolls, chicken nuggets, chocolate, and the word "booty."
The Boy, who is seven, has Tourette's Syndrome Plus. The "Plus" means that he is also plagued, in varying degrees, by many of the acronymed disorders that also affect Tourette's sufferers. We struggle to provide him with the optimal medication and therapy in order to relieve him of symptoms and set him up for success. It's tough, but the payoff is big: he is doing exceptionally well in school, he's mostly happy and healthy, and he impresses people with his sense of humor and excellent conversational skills. His activity level and debating abilities keep me very busy. He loves superheroes and villains, Junie B. Jones, gymnastics, games, any activity involving a ball, and annoying me.
I'm always exhausted, often have a headache, and I spend ridiculous amount of time cleaning up someone's/something's poop and/or vomit. I like music, books, TV, games, twitter, facebook, reading a great blog or website, the occasional rabbit show, and laughing. I have a Bachelor's degree in Mass Communications and a Master's degree in Elementary Education. I'm enamored with celebrity and daydream about being a rock star. If you'd like to make me famous (or just say hi), email me at firstname.lastname@example.org.
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